DISABILITY, LAW AND CHALLENEGES
1) DEFINITION OF DISABILITY
A disability is a physical
or mental problem that makes it difficult or impossible for a person to walk,
see, hear, speak, learn, or do other important things. Some disabilities are
permanent, or last forever. Others are temporary, or last for only a short
period of time. A disability can be something a person was born with.
The United Nations Convention on the Rights of Persons with Disabilities defines disability as “long-term physical, mental, intellectual or sensory impairments which in interaction with various barriers may hinder (a person’s) full and effective participation in society on an equal basis with others.”
According to the Constitution of Nepal, a disabled person is “one who is mentally or physical unable to lead a normal life.” Similarly, the World Health Organization (WHO) defines disability as “denotes impairments, activity limitations and participation restrictions.”
Likewise, the International
Classification of Functioning, Disability and Health (ICF) describes “Disability is an umbrella
term for impairments, activity limitations and participation restrictions. It
denotes the negative aspects of the interaction between a person's health
condition(s) and that individual's contextual factors (environmental and
personal factors).”
Moreover, according to the World Health Organization disability has three dimensions:
- Impairment in a person’s body structure or function, or mental functioning; examples of impairments include loss of a limb, loss of vision or memory loss.
Activity limitations such as difficulty seeing, hearing, walking, or problem solving.
- Participation restrictions in normal daily activities, such as working, engaging in social and recreational activities, and obtaining health care and prevention services.
Furthermore, Census Report of Nepal (CRN) has classified disability into seven groups:
1) PHYSICAL DISABILITY: partial or total loss of physical operational abilities; problems with the use and movement of nerves or muscles; and complications with the composition and, or operation of bones and joints including amputation, arthritis and cerebral palsy.
2) VISION-RELATED DISABILITY: where and individual’s eyesight is impaired and cannot be corrected. Where an individual is unable to see clearly from both eyes at a distance of 20 feet, they are considered to have ‘low vision.’
3) HEARING-RELATED DISABILITY: a condition in which an individual is unable to hear sound, and, or the rise and fall in sound. A deaf individual is someone who cannot hear sound above 80 decibels. An individual who can hear sound between 65-80 decibels is considered to be hard of hearing.
4) DEAF-BLIND: an individual who has both vision and hearing-related impairments.
5) VOICE AND SPEECH-REALTED DISABILITY: This is characterized by unclear speech and unnecessary repetition of words and letters.
6) MENTAL DISABILITY: where an individual has abnormal brain function. There are three classifications:
·
Where an individual unable to carry out activities relative to their
age or environment due to an absence of intellectual development prior to the
age of 18 years, they are known as intellectually disabled or mental
retardated.
·
Where an individual is unable to conduct his/her daily life
activities due to a mental illness, they are known having a chronic mental
illness.
·
Where an individual is unable to demonstrate normal behaviour and
communication patterns (through the use of language), or where they
consistently repeat one activity, they are considered to have autism.
2) DIFFERENCE
BETWEEN THE TERMINOLOGY ‘DISABILITY,’ ‘HANDICAP,’ AND ‘IMPAIRMENT’
These three terminologies
sound similar but there are some differences in the terminology. So, let’s see
the differences between the terminology ‘disability,’ ‘handicap’ and
‘impairment.’
- DISABILITY: Any restriction or lack (resulting from an impairment) of ability in the manner or within the range considered normal for a human being. In other words, a physical, cognitive, mental, sensory, emotional, developmental, or mix of these impairment is disability.
- HANDICAP: A disadvantage for a given individual that limits or prevents the fulfilment of a role that is normal. Any genetic or acquired physical or mental impairment that prevents or limits a person from engaging in daily activities or reduces their ability to work is defined as handicap.
- IMPAIRMENT: An
impairment occurs when there is a problem that affects the normal huma body
structure or organ. Cerebral palsy is an example of an impairment because it
has a variety of effects on the body's structure in persons who have it. It
makes it difficult for the person to move their various limbs since it causes
the joints to stiffen as a result of painful muscle contractions. Additionally,
it makes the jaws tighten up and clench together in such a way that some people
find it difficult to loosen the jaw. Some people with cerebral palsy may
experience limb deformities and restricted growth. All of these factors affect
the physical structure of the body and are included in the definition of an
impairment.
EXAMPLES
·
A learning disability, especially a reading
disability is dyslexia. Let’s assume that the student is intelligent above
average and has good hearing and vision. The inability of the brain to decode
words to read is hence the handicap. The letter symbols and sounds cannot be
connected by the brain correctly.
·
The student’s learning difficulty is now
reading comprehension. Specific intervention programs, such as multimodal
reading instruction can be used to improve it.
·
The person may struggle in class due to various
learning handicaps. For instance, the students might be unable to complete the
reading in class. However, if the learner is given some accommodations, such as
the ability to record lectures and listen to books on audiotapes, they perform
well on the level with their friends.
3) MISCONCEPTION AND MYTHS ABOUT DISABILITY
There are misconception and
myths about disability especially in the context of Nepal. Some people believe
that a woman only develops a disability if she or her parents engaged in
extramarital sexual activity, offended their ancestors, or did something wrong
in a previous life. People normally accuse the mother. But a child's disability
is not the mother's fault. And blaming others for a disability is not the right
way. Additionally, people also believed that disability is caused by cursed or
witchcraft which is not true.
Another misconception about disability
is that persons with disability should be ignored, mocked, and criticized.
There is also the belief that people with disabilities are a sign of bad luck. Furthermore,
sometimes women with disabilities are sexually abused because people believe
they are free of HIV/AIDS or that having sex with a disabled women can cure
HIV/AIDS.
There are some common myths about disability in the society which includes:
MYTH: A person’s disability
defines who they are as an individual
People frequently categorize
people with disabilities based on their condition or restrictions. In our daily
lives, we frequently hear the terms like “the disabled” or “the epileptic.”
MYTH: People with
disabilities are special and should be treated differently
The term ‘special’ does not
imply equality to the disability. Expectations for success shouldn’t be
undervalued because people with disability are given ‘special’ labels.
MYTH: People with
disabilities are dependent and always need help
All of us might need help
with certain tasks since we may find them challenging. Disability does not
imply reliance; however occasionally disabled people may need assistance. Never
presume a person with a disability requires assistance. Simply ask!
MYTH: People with
disabilities want to associate with each other
Friendships and
relationships are matters of personal preference. Although there may be
similarities among people with disabilities, it shouldn’t be assumed that
everyone wants to associate or make friends with one another.
MYTHS: People are confined
to their wheelchair
People with disabilities do
not consider themselves to be “confined” to their wheelchairs. Similarly, a
person without disability is not confined to their car. Like a car, a
wheelchair is a method of transportation that increases one’s independence.
4)
KEY FACTS ABOUT THE DSIABILITY BASED ON WORLD HEALTH ORGANIZATION (WHO)
·
An estimated 1.3 billion people experience
significant disability. This represents 16% of the world’s population, or 1 in
6 of us.
·
Some persons with disabilities die up to 20
years earlier than those without disabilities.
·
Persons with disabilities have twice the risk
of developing conditions such as depression, asthma, diabetes, stroke, obesity,
or poor oral health.
·
Persons with disabilities face many health
inequities.
·
Persons with disabilities find inaccessible
and unaffordable transportation 15 times more difficult than for those without
disabilities.
·
Health inequities arise from unfair
conditions faced by persons with disabilities, including stigma,
discrimination, poverty, exclusion from education and employment, and barriers
faced in the health system itself.
5) HUMAN RIGHTS AND PEOPLE WITH DISABILITIES
Every day, people with
disabilities face discrimination. Not only they face discrimination but they
have restriction on the barriers from participating in the society on an equal
basis with other. Their rights to vote, to live independently in the community,
to participate in sport and cultural activities, to enjoy social protection, to
access justice, to choose their own medical care, and to freely enter legal
obligations like buying and selling property are all frequently denied to them.
People with disabilities are
overrepresented among the population in the developing nations, often
marginalized and in extreme poverty. Additionally, people with disabilities are
frequently left behind during humanitarian crises, having little to no
influence over the reconstruction of their lives and communities.
The protection guaranteed in
other human rights treaties, and grounded in the Universal Declaration of Human
Rights should apply to all. However, people with disabilities have mainly
remained ‘invisible’ frequently being left out in the rights debate and being
denied the opportunity to fully enjoy and exercise their human rights.
5.1)
CONVENTION ON THE RIGHTS OF PERSONS WITH DISABILITIES
The Convention on the Rights
of Persons with Disabilities is an international human rights treaty to United
Nations aimed at defending the rights and dignity of persons with disabilities.
The convention requires the parties to promote, safeguard, and ensure that
persons with disabilities can fully exercise their human rights and are treated
equally by the law. The Convention acts as a significant stimulant for the
global movement for the rights of people with disabilities, facilitating a
change from seeing people with disabilities as object of charity, medical care,
and social protection to seeing them as full, equal, and human rights. The
convention was the first human rights deal signed by the United Nations in the twenty-first
century.
The document was approved by
the UN General Assembly on December 13, 2006 and it became available for
signature on March 30, 2007. After being
ratified by the 20th party, it came into effect on May 3, 2008. It
currently includes 186 parties, 185 states, and the European Union (which
ratified it on December 23, 2010), with 164 signatories as of January 2023.
Since 2008, yearly Conferences of States Parties to the CRPD have established
rules for the Committee on the Rights of Persons with Disabilities which
oversees the convention. Due to the COVID-19 dilemma, the thirteen Conference
of States Parties which was originally slated to convene in New York in June
2020 has been tentatively postponed taking place in December 2020.
5.2)
SUMMARY
The Convention follows the civil law tradition,
with a preamble, in which the principle that "all human rights are
universal, indivisible, interdependent and interrelated "of the
Vienna Declaration and Programme of Action is cited.
The 25-subsection preamble explicitly mentions sustainable
development, notes that "disability" is an "evolving
concept" involving interaction between impairments and environmental
factors, and mentions the importance of a "gender perspective". The
preamble is followed by 50 articles. Unlike many UN covenants and conventions,
it is not formally divided into parts.
Article 1 defines the purpose of the
convention:
to promote, protect and ensure the full
and equal enjoyment of all human rights and fundamental freedoms by all persons
with disabilities, and to promote respect for their inherent dignity.
Article 2 provides definitions of some
keywords in CRPD provisions: communication, (including Braille, sign language, plain language and nonverbal
communication), discrimination
on the basis of disability, reasonable accommodation and universal design.
Article 3 delineates the CRPD's eight
"general principles" described below, while Article 4 delineates
parties' "general obligations."
Articles 5–32 define the
rights of persons with disabilities and the obligations of states parties
towards them. Many of these mirror rights affirmed in other UN conventions such
as the International Covenant on Civil and Political Rights, International Covenant on Economic, Social and
Cultural Rights and the Convention
Against Torture, but with specific obligations ensuring that they can be
fully realized by persons with disabilities.
Rights specific to this convention include
the rights to accessibility including
the information
technology, the rights to live independently and be included in the
community (Article 19), to personal mobility (article 20), habilitation and
rehabilitation (Article 26), and to participation in political and public life,
and cultural life, recreation and sport (Articles 29 and 30).
In addition, parties to the Convention must
raise awareness of the human rights of persons with disabilities (Article 8),
and ensure access to roads, buildings, and information (Article 9).
Articles 33–39 govern
reporting and monitoring of the convention by national
human rights institutions (Article 33) and the Committee on the Rights of Persons with Disabilities (Articles 34
through 39).
Articles 40–50 govern
ratification, entry into force, relation to "regional integration organizations", reservations, amendment, and denunciation of the
convention. Article 49 requires that the Convention be
available in accessible formats, and Article 50 provides that
the convention's "Arabic, Chinese, English, French, Russian and Spanish
texts" are "equally authentic".
The Key principles of the CRPD are stated in
Articles 3 and they are applicable across all of its articles which includes:
·
Respect for inherent dignity, individual autonomy
including the freedom to make one’s own choices, and independence of persons;
·
Non-discrimination;
·
Full and effective participation and inclusion in
society;
·
Respect for difference and acceptance of persons with
disabilities as part of human diversity and humanity;
·
Equality of opportunity;
·
Accessibility;
·
Equality between men and women;
·
Respect for the evolving capacities of children with
disabilities and respect for the right of children with disabilities to
preserve their identities.
6)
PERSONS WITH DISABILITIES IN THE CONTEXT OF NEPAL
According to Nepal Census
2078, 2.2% of the Nepali Population have some form of disability. Among the
male population, 2.5% and the entire female population, 2.0% have some
disability. The list of percentages that represent the prevalence of different
types of are:
- Physical (36.75%)
- Low vision (16.88%)
- Blind (5.37%)
- Deaf (7.85%)
- Hard of Hearing (7.875)
- Deaf and Blind (1.56%)
- Speech Impairment (6.36%)
- Psycho-social disability (4.2%)
- Intellectual disabilities (1.73%)
- Hemophilia (0.75%)
- Autism (0.75%)
- Multiple Disability (8.78%)
- Not Stated (1.07%)
6.1)
DATA OF DISABILITY
Figure 1: Data of Percentages of Disability in Female and Male
Figure 3: Data of percentages
persons with disabilities in seven provinces
6.2)
DISABILITY IDENTITY CARD
Disability Identity Card
(ID) is the key document issued for individuals with disabilities and qualifies
a person as a recipient of disability allowance, a Social Security Programme of
the Government of Nepal.
From 2009, the Government of
Nepal has started providing Disability Identity Card (ID) to persons with
disability from 2009 as per the provision of Disability ID Card Distribution
Directive 2065 (2009). However, the government had previously introduced the
bill on disabilities in 2006.
One of five government-run
social security allowance (SSA) programs in Nepal, the disability allowance
provides financial payments to people with disabilities. Additionally, the
government has adopted a set of policy tools to defend the rights of
individuals with disabilities and to grant them access to a variety of discounts
and services as part of its strategy to advance their inclusion and welfare. In
order to be eligible for the disability allowance and to access specialized and/or
subsidized services, people with disabilities must possess a disability
identity card which classifies person based on the severity of their disability.
There are four types of disability identity card which includes red, blue,
yellow and white. A person with complete disability (‘A’ category), severe disability
(‘B’ category), moderate disability (‘C’ category) and general disability (‘D’
category) will obtain read, blue, yellow and white card respectively. Only people with a red or blue disability
identity card-which according to the government’s classification, signify
“complete” or “severe” disabilities- are qualified to receive the payment.
People with disabilities who
hold a red or blue disability card are eligible to receive a government
disability allowance. Red card holders receive an allowance of Rs. 2,000 a
month while blue card holders receive an allowance of Rs. 600 a month. The
money is transferred through the bank or hand-delivered every four months.
Figure 4: It shows the data
of Identity Card Distribution to Persons with Disability
7) NEPAL’S CONSTITUTION TOWARDS PEOPLE WITH
DISABILITY
According to the Nepal’s
Constitution, it has provided act, rights and laws to the persons with the
disabilities which are:
·
RIGHT TO INFORMATION:
1)
No person with disability shall be subjected
to discrimination on the basis of disability or be deprived of personal
liberty.
2)
No person shall make any kind of
discrimination on the basis of disability in making enrolment of a person with
disability in an educational institute, in lending loans by a bank or financial
institution.
3)
No member of his or her family or guardian
shall, on the basis of disability, make any kind of discrimination against a
person with disability in the maintenance, care, provision of foods,
distribution of property or any other act.
4)
No person shall, on the basis of disability,
be prohibited from using or entering into any building or place that is open
for use or entry by the general public whether with or without fee or no
additional terms or liability shall be imposed in this respect on such basis.
·
RIGHT TO COMMUNITY LIFE
1)
A
person with disability shall have the right to live with his or her family or
guardian or in a place of residence chosen by him or her, on an equal basis
with others, and he or she shall not be compelled to live in any specific
place.
(2) The persons with disabilities shall have
the right to obtain assistive materials and community assistance in order to
earn the living respectfully.
·
RIGHT TO PROTECTION:
1)
The
person with disability shall have the right to obtain protection against any
kind of inhuman or degrading treatment, physical or mental violence,
gender-based violence, domestic violence, sexual harassment and exploitation by
the family guardian or other person.
2)
The
persons with disabilities shall have the right to obtain security, rescue and
protection with priority in times of armed conflict, state of emergency or
disaster.
3)
The Government of Nepal shall make the
following provisions in order to protect the persons with disabilities against
any kind of exploitation, violence and harassment including gender-based
violence: (a) To obtain information of incidents of exploitation, violence,
harassment, gender-based and sexual violence committed against the persons with
disabilities, and maintain records thereof, (b) to take effective legal action
in accordance with this Act and the prevailing law against exploitation,
violence and incidents referred to in clause (a), (c) To immediately and
effectively provide security to, rescue, protect and rehabilitate, the victims
from such incidents, (d) To make proper arrangements for preventing such
incidents, (e) To launch awareness and
counselling programs at the community level against such incidents.
·
RIGHT OF POLITICAL PARTICIPATION:
1)
The persons with disabilities shall, on an
equal basis with others, have the right to become candidate in elections in a
fearless environment and to cast votes voluntarily, with or without assistance
of others.
2)
The Government of Nepal shall make
appropriate provisions that the process and facilities of voting are accessible
to the persons with disabilities and materials related thereto are easily
understandable by and accessible to them.
·
RIGHT OF PARTICIPATION IN POLICY MAKING:
1)
The persons with disabilities shall have the
right to participate on their own or through their related unions,
organisations in the process of development of important policies that may
affect them.
2)
In making participation in the development of
policies pursuant to subsection (1), the views expressed by the persons with
disabilities shall be given appropriate place on the basis of relevancy.
·
RIGHT TO FORUM UNIONS: The
persons with disabilities shall have the right to establish, operate and manage
unions or organisations in accordance with the prevailing law.
·
RIGHT
TO PARTICIPATE IN THE CULTURAL LIFE:
1)
The persons with disabilities shall have the
right to participate, on an equal basis with others, in cultural programs or
services and entertainment, including television programs, films, dramas,
theatres, cinema halls, libraries, tourism services, arts, literature and
music, in accessible formats and manner.
2)
The persons with disabilities shall have the
right to develop and utilize their creative, artistic, intellectual,
professional and internal potentiality.
3)
The
persons with disabilities shall have the right, on an equal basis with others,
to recognition and support of their specific cultural and linguistic identity,
including sign languages and deaf culture.
·
RIGHT OF ACCESS TO SERVICES, FACLITIES
AND JUSTICE:
1)
The persons with disabilities shall have the
right to have easy access to other services and facilities that are open or
provided for the public, including educational institutes, housing, workplaces,
buildings, roads, transportation, and electronic communication services.
2)
The persons with disabilities shall have the
right to free legal aid in order to ensure that they have access to justice.
·
RIGHT TO SOCIAL SECURITY:
1)
The persons with disabilities as prescribed
shall have the right to obtain economic assistance or social security as
prescribed from the Government of Nepal.
2)
The persons with disabilities shall, in
obtaining and enjoying any opportunity, have the right to get reimbursement for
additional expenses incurred in the assistive services that they use.
·
RIGHT TO INFORMATION:
1)
The
persons with disabilities shall have the right to obtain information from
public communication media in disabled friendly and accessible formats.
2)
Electronic broadcasting Institutions of
public communication shall conduct news and other programs in sign language in
such a number as specified by the Government of Nepal.
3)
The persons with disabilities shall have the
right to obtain the information that is intended for the public in accessible
formats and appropriate technology without any additional fees or charges.
4)
Communication service providers, including
telephone and internet, shall make available the services that they provide to
the persons with disabilities in accessible formats and usable manner, within
the period specified by the Government of Nepal.
·
RIGHT TO MOVEMENT: The persons with disabilities shall have the
right on an equal basis with others to make movement with their assistant
materials and assistance of persons of their choice.
·
TO PROVIDE FREE EDUCATION:
1) The educational institutes operated by the
Government of Nepal or Local Level or that receive grants from the Government
of Nepal shall provide free higher education to the persons with disabilities.
2) The educational institutes as prescribed
by the Government of Nepal shall provide free higher education to the persons
with disabilities.
3) No fee of any kind shall be collected form
a person with disability for getting admission to an educational institute.
4) The vocational and technical education as
prescribed shall be freely provided to the persons with disabilities.
5) No educational institute shall
discriminate against the persons with disabilities with regard to
extra-activities, distribution and access to educational materials.
6) The Government of Nepal shall make
provisions to provide education to the persons with disabilities through more
than one means such as brail or alternative scripts, sign language, means of
information technology and peer learning, in order to ease the imparting of
education.
7) The Government of Nepal shall make
provisions to provide education as prescribed through accessible information
technology means, including appropriate language method, scripts, curricula and
coursebooks, to the persons with sight disabilities, hearing disability,
hearing impairment, sight and hearing impairment.
8) The Government of Nepal may make
arrangements for the provision of education along with hostel facility to such
persons with disabilities as prescribed, on the basis of, inter alia,
indigency, geographical remoteness or severity of disability.
9) The persons with disabilities shall be
enabled to obtain access to vocational and technical education, adult
education, practical education and continuing learning, by providing them with
reasonable accommodation.
10) The Government of Nepal shall, on the
basis of the classification of disabilities, make separate provision, as
required, with regard to education and evaluation system of the students with
disabilities.
11) The educational institutes shall make
provisions of disability friendly educational materials, having regard to the
needs of the persons with disabilities.
12) The educational institutes shall build
school buildings and other physical structures in accordance with the standards
determined by the Government of Nepal, in such a manner as to ensure the access
of the persons with disabilities.
13) The educational institutes operated by
the private sector shall provide fee study facilities to such a number of the
students with disabilities as determined by the Government of Nepal.
·
TO PROVIDE SCHOLARSHIP AND FINANCIAL
ASSISTANCE:
1)
The Government of Nepal shall provide
educational scholarship as prescribed for the education that has not been made
free for the students with disabilities.
2)
The Government of Nepal shall provide
financial assistance as prescribed for the development of physical
infrastructures and other services, facilities of the schools that operate
special education programs for the students with disabilities.
·
TO ENHANCE ACCESS OF THE STUDENTS WITH
DISABILITES TO QUALITY EDUCATION:
1)
The
Government of Nepal shall make necessary provision as prescribed to give
continuity to and promote study of the students with disabilities.
2)
The
Government of Nepal shall make provisions for special trainings for the
teachers with disabilities and teachers who teach the students with disabilities.
3) The Government of Nepal shall make freely available the educational materials as prescribed to the schools in order to ensure the access of the students with disabilities to schools and learning.
8)
THE TERMINOLOGY THAT SHOULD BE USED FOR THE DISABLED PEOPLE
While talking with disabled
people, language matters. We don’t know what languages should be used or how to
use them. Some words might hurt them. So, there are some terminologies to be
used which are:
Don’t
Say |
Instead,
say |
Why? |
He has special needs. |
He has an intellectual disability. |
He may feel patronized by the word
“special.” |
She
is differently abled. |
She
has a disability. |
She
doesn’t need to feel more different than she already might. |
He is handicapped. |
He has a disability. |
Just because he has a disability
doesn’t mean he is necessarily handicapped from leading a normal life. |
She
is mentally disabled. |
She
has an intellectual disability. |
This
has negative historical connotations. |
He is crippled. |
He has a disability. |
The word “crippled” actually means
damaged or flawed and is an insensitive way to describe a person with a
disability. |
Normal
|
People
who don’t have disability. |
Normal
doesn’t really exist. By using this word it implies that people with a
disability are abnormal. |
9) SUCCESS
STORIES
a) JHAMAK GHIMIRE
Jhamak Ghimire had to
overcome difficulties at every stage of life due to cerebral palsy. She had
endured much hardship during her life. Furthermore, her cerebral palsy from
birth is one of her main obstacles. Despite the family’s poor financial
situation, she had to overcome obstacles at every turn of her life because she
was a physically challenged woman. However, she found a means to survive because
of her efforts and obstacles. Jhamak Kumari is the family’s eldest daughter,
and she was born in 5th of July, 1980.
She used to receive hate
from people for her disability. Additionally, her relatives used to refer to
her as Murkatta. With such unfavoured conditions, she used to receive the
blessing of the dead from her elders on Dashain tika. It was one of the worst
things that she had ever heard. However, she learned a lesson from each of
these experiences that has strengthened her and given her the will to do
something.
She became well known
because of her autobiography book named ‘Jiwan Kada Ki Phool; which depicts the
difficulties and struggles faced by all physically challenged persons. She has portrayed
the difficulties and struggles she had faced in her personal life in her
autobiography. For this book, she received the most prestigious award in Nepali
Literature, the Madan Puraskar 2010.
b) KAMAL LAMICHHANE
Kamal Lamichhane
is from the Chitwan district of Jutpani. He was the fifth child born to late
Bhanubhakta Lamichhane and Goma Lamichhane. His parents delayed enrolling him
in school until he was 12 years old. He has overcome a number of obstacles to
successfully lift the curtain of darkness. He consistently ranked in the top
ten in his class in both high school and college. He had to skip several
picture-based exam questions, and this used to lower his grade.
The
visually impaired do not usually study languages due to the general lack of
necessary materials, and at university Lamichhane was the first
such student to graduate from university with a degree in the subject, earning
the highest grade in the nation. He finished his studies at Bhaktapur's Adarsha
Secondary School.
He is the first visually
impaired person to be decorated with PhD.
His PhD dissertation addresses disability from an economic perspective. He has researched how education promotes social and
economic inclusion for people with disabilities. Likewise, he is also
the first Nepali to be shortlisted for the Junior Chamber International Ten
Outstanding Young Persons of the World (JCI TOYP) Award from Nepal.
c) NICK VUJICIC
Nick Vujicic is an Australian
American motivational speaker who was born with tetra-amelia syndrome, which is
an extremely rare congenital disorder that causes a child to be born without
any limbs. This disease is usually terminal for infants, but Nick survived the
odds.
Born in 1982, Nick was
bullied as a child, which led to a deep depression and thoughts of suicide.
However, Nick grew into an empowered adult who turned his disability into a
positive force for the world once he recognized his own potential.
Nick is an evangelist who
has become the founder of an international non-profit ministry, Life Without
Limbs. As a motivational speaker, actor, writer, and father of four, he has
already accomplished at a young age more than many achieve in a lifetime.
d) MUNIBA MAZARI
Muniba Mazari belongs to
Pakistan. At age of 21, she met with a car accident that left her lower body
paralyzed. She spent 2 and a half months at a hospital and underwent 3 major
and 2 minor surgeries. The list of her injuries is a long one, out of which, her
spinal chord injury changed her life. She started painting and discovered her
skill when she was bedridden for 2+ months. While she painted portraits of
sorrow and how she felt, others found her work absolutely astonishing. It has
been almost 10 years since her accident, she is now a motivational speaker, a
prolific artist and interestingly, a wheelchair model and television host.
Rising from Pakistan, she wants the world to recognize the talent and zeal of
Pakistani girls. Being a model and a motivational speaker, she is also one of
the most famous people with disabilities.
She believes that even
though her body is caged, her mind is still free to concur anything. She is a
living example of what you do with your brains, and that your disability is not
inability.
e) DR. SATENDRA SINGH
At the age of nine months, Dr. Satendra Singh contracted Poliomyelitis.
That means he is destined to remain disabled for the rest of his life. Satendra
determined to study medicine and worked hard. He completed MD. Dr Satendra Singh is a medical doctor at
the University College of Medical Sciences and Guru
Tegh Bahadur Hospital, Delhi. A physiologist by
profession, he contracted poliomyelitis at
the age of nine months but went on to complete a Bachelor of Medicine, Bachelor of Surgery from Ganesh Shankar Vidyarthi Memorial
Medical College, Kanpur and later on Doctor
of Medicine in Physiology.
He is the first ever Indian to win the prestigious Henry Viscardi Achievement Awards given
to extraordinary leaders in global disability community. He is a noted
disability activist especially for his sustained efforts in making public
places accessible for disabled persons for which he was conferred
National Award by President
of India. He is also the first Indian to be awarded
the MacLean Center for Clinical Medical Ethics fellowship
at the University
of Chicago.
He advocated for not only his but other
disabled doctors' rights. He also brought into the open the discrimination by
UPSC which disallowed doctors with disabilities to apply for various Central
Health Services (CHS) posts. He himself was rejected in 2014 but fought and was
later allowed to appear for the interview. In 2013, his application was again
rejected when he highlighted that the same discrimination was also present for
the other posts. He was allowed to apply in a quick intervention. His RTI
revealed that doctors with disabilities are not considered eligible for specialist
CHS posts in teaching, non-teaching as well as public health specialist cadres.
Undeterred, he complained again and requested the health ministry to allow all
eligible doctors with disability to apply for these posts. His single-handed
relentless fight for justice over four years ultimately forced Health Ministry
to unlock 1,674 specialist central posts for disabled doctors.
10)
CHALLENGES
Persons with disability face
challenges which include accessibility in physical environments and on the
Internet, social exclusion, the absence of assistive technology, and barriers
in healthcare and in the workplace. Moreover, the World Health Organization
(WHO) has outlined some examples of common accessibility issues, including
events that do not provide sign-language interpreters for attendees who are
deaf or hard of hearing, buildings that do not include wheelchair-accessible
bathrooms or elevators, or software for blind users. These types of
accessibility issues make a disabled person’s life more difficult and sometimes
prevent the individual from accomplishing certain tasks or fully participating
in social events.
Additionally, in terms of
education, in 2017, Nepal adopted the Disability Rights Act and an Inclusive
Education Policy for Persons with Disabilities. The policy says that children
should be able to study, without discrimination, in their own communities, but
also allows educating for children with disabilities separately.
Although has adopted the
Act, it has failed to implement. There is no reasonable accommodations to
support individual learning which includes braille textbooks, audio, video, and
easy-to-read learning materials; instruction in sign language for children with
hearing disabilities; and staff to assist children with self-care,behaviour, or
other support needed in the classroom. Likewise, there are lack of trained
teachers.
Similarly, most people don’t
know about the Convention on the Rights of Persons with Disabilities. Articles
29 of the Convention clearly states that “voting procedures, facilities and
materials must be appropriate, accessible and easy to understand for use by
persons with disabilities.”
Nepal has the provision of
Right to Vote but persons with disabilities continue to be marginalized from
full participation in society. The electoral framework is silent on ensuring
the people with disabilities can participate in all aspects of the election process,
including voting, filing nomination and complaints, and reviewing campaign
finance reports at the office of Nepal Election Commission.
Additionally, for persons
with disabilities, physical accessibility is a major obstacle especially in public
transportation vehicles. The cdesgin of the public transportation is difficult
for them. Moreover, the operator of the vehicles might refuse to carry
wheelchair users. That’s why, persons with disabilities don’t actively participate
in voting, political rallies and etc.
In conclusion, persons with
the disabilities have challenges which includes:
·
Weak national capacities
·
Lack of resources
·
Accessibility problems
·
Low awareness
· Lack of livelihood support
CHALLENGES FACED BY DISABLED
PERSONS IN THE WORKPLACE
- Lack of education
- Trapped in Poverty
- Stigmatization
- The disparity between supply and demand
- Transport and Accommodation Facilities
- Negative Attitudes
REFERENCES
Maxwell Jane, Belser Watts
Julia, David Darlena: A Health Handbook for Women with Disabiliites, (June 1,
2008)
Dangal, Hemanta, Paneru,
Supa, Pokhrel Mala, Baijayanti (2020) “Constraints on Applying Disability
Identity Card: A Study from Rural Municipality from Midhill Nepal.” Journal of Social Protection
Holmes, Rebecca, Samuels,
Fiona, Ghimire, Anita (June 2018). “Nepal’s cash allowances for children with
disabilities
https://www.recordnepal.com/exploring-barriers-to-the-right-to-inclusive-election-in-nepal
https://myrepublica.nagariknetwork.com/news/dr-kamal-lamichhane-enlisted-in-jci-s-top-20/
https://thehimalayantimes.com/opinion/lamichhane-first-nepali-with-disablity-to-get-phd
https://www.kumarbbaniya.com.np/jhamak-kumari-ghimire-biography
https://nepalindata.com/insight/identity-card-distribution-to-persons-with-disability/
https://nfdn.org.np/ne/news/disability-data/
https://en.wikipedia.org/wiki/Convention_on_the_Rights_of_Persons_with_Disabilities
https://www.who.int/news-room/fact-sheets/detail/disability-and-health
http://www.markwynn.com/wp-content/uploads/Common-Myths-and-Misconceptions-about-Disability.pdf
https://www.diffen.com/difference/Disability_vs_Handicap
https://studylib.net/doc/25685596/differences-between-impairment--disability-and-handicap
https://www.cdc.gov/ncbddd/disabilityandhealth/disability.html#ref
https://www.cdc.gov/nchs/data/icd/icfoverview_finalforwho10sept.pdf
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